Tag Archives: Coping with Your Child’s Special Needs

Therapy’s Transformational Moments

In times of difficult emotions, it’s important to know that psychotherapy can offer transformational change and emotional growth.

I wanted to share this moving article from this week.

By Barry Duncan – Reprinted from Psychotherapy Networker online

A recent consult I did illustrates the intrinsic rewards of healing involvement and intimate connection. It also taught me that anything is possible—that even the bleakest sessions can have a positive outcome if you stay with the process.
— Read on www.psychotherapynetworker.org/blog/details/698/therapys-transformational-moments

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The Best Gift of All

Courtesy of Ikar, Los Angeles
Courtesy of Ikar, Los Angeles

THE BEST GIFT OF ALL

Now that the gifts are unpacked and family celebrations are winding down, is it possible to include an often overlooked dimension to this winter season?

This might be the right time to introduce to your child an extra awareness of the world around us and to cultivate your own version of spirituality.  Recent research has found that children who are more spiritual are happier – and healthier.  This doesn’t necessarily mean typical religious practices but the research included qualities such as a child’s sense of personal meaning and their sense of basic values as kindness towards others, altruism, meaningful relationships and volunteering.  All of these things, the research found, were associated with a spiritual life and ‘enhanced well being.’

It is often said that children are more open to spirituality than adults who have become hurried, cynical or just too busy to consider adding a spiritual dimension to the day.  But children also need to be exposed to the possibility of expanding their consciousness outward, not just downward into the face of an ipad tablet, but outward to notice the gifts of nature and the wonder of living a life that transcends the material world.

When we elevate our children’s sense of wonder, we also open the possibility of having a child who just might be more contented, less hyperactive and more open to other types of  thinking that is not found automatically from living in the grind of the daily routine or found on TV.

Children who are atypical are often more vulnerable to the commercial influence of the shopping ‘gotta have it’ culture.  And parents of atypical kids are more stressed, and more invested in trying to make their children happy so they also may buy into the culture of ‘more’ while forgetting that there is another side to life.

Yet, just as spirituality is good for kids, it is also good for you, the parent. Even the most secular and least religiously affiliated parent can consider the possibility of connecting children to forces outside their own sense of self.  When we experience living as connected to the world as a whole, rather than the “me-me-me dimension” ,  lives become enriched.  Consider, for example, how you might feel after a morning volunteering at a homeless shelter rather than another trip to the local mall?

Providing perspective on life is important, especially for atypical children who are struggling in their own way and are confronted with a great deal of inner stress.  In this season of wonder and change for the new year, consider the possibility of adding an extra dimension to your life as well as that of your children.

5 tips to cultivating spirituality in yourself and in your children.

  1. Gratitude –   give thanks before you eat, not just for the food but for everything that allowed the meal to get to the table.  The farmer, the store, the truck that brought the food and the blessing of being in a country that has food in abundance. Get in the habit of pointing out your blessings, from the big things to the little things we all take for granted.  Children will learn what they see, and gratitude will help a child be more sensitive and appreciative.
  2. Practice wonder – a mindful contemplation.  Experiment with having a moment of silence and pay attention to how you are feeling.  Do this with your children.  Report to each other how it felt to be silent and what you were thinking and feeling.  You can do this before before bedtime, including breathing and stillness as a practice.
  3. Helping others – practicing kindness and giving are experiences that children can learn to model.  Volunteer as a family or just perform random acts of kindness, such as helping an older person open the door or take their groceries to the car for them.  It can open conversations for children that would not occur otherwise.
  4. Connect with nature – consider spending your evening with a contemplative walk outside and appreciating the stars.  Experience along with your child  a walk in the forest or a picnic at the beach. Take the time to look at the shore, the waves and the sky and point out details that might get overlooked. Consider the snowflakes as being unique and draw parallels to your unique child.  By having these conversations, you are exercising your child’s ‘spiritual muscle’ and are building more calm and resilient children as well enriching your self.
  5. Provide a spiritual role model – If you don’t feel like you can be a positive spiritual role model, try to find one for your child.  This will help your child connect outward and learn from others a more purposeful and positive outlook.

For more information on building spirituality in children, visit these websites:

www.Spiritualityforkids.com

http://www.livescience.com/3198-spirituality-religion-kids-happy.html

http://www.amazon.com/Spiritual-Life-Children-Robert-Coles/dp/0395599237

Umbrella Parents, Part 2: How Much Is Too Much?

Sometimes you have to retract the umbrella to find out what your kids are capable of.
Sometimes you have to retract the umbrella to find out what your kids are capable of.

Last post, I defined “umbrella parents” as parents who have to do what it takes to get their child’s needs served, even if it means looking like a ‘smother mother’ to other parents. I have always advocated parents being fully in the ring with their kids—and urge them to do whatever it takes to get their child’s needs met at school, camp, sports teams and elsewhere.

In that post, I also talked about executive function development and how it is often delayed in atypical children. This makes it essential for good parents to pave the way for their kids. Teachers, coaches, counselors and well-meaning parents of other children can be unintentionally cruel unless they are instructed otherwise. Your child clearly needs strong parental support as he or she is growing up.

But when does protecting your child become a habit rather than a necessity?

Or, as the exhausted mother of a teen put it, “Just exactly until when do we have to keep doing all of this?”

What Are Habituated Parents?

Umbrella parenting takes a lot of energy, planning and anticipating daily twists and turns of life. But eventually, it’s time to let go…. slowly. Sometimes this doesn’t happen fully until young adulthood, but it’s never too early to try to release the reins and see what happens, if only for a moment. Otherwise, parents risk becoming habituated to their children’s dependency and forget that the goal of umbrella parenting is to ultimately let go.

Here is an example of what I mean by a habituated parent:

Herbert is 11 years old. He’s so anxious about coming to me for testing that he is lying on the floor of the waiting room at his mother’s feet. She apologizes for him but does not make him sit up. He is, you see, anxious.

Herbert sullenly shuffles into my office and slumps into the chair. Mom checks that he has his backpack and enough snacks, and then tells him she loves him twice before leaving.

Who is the anxious one here?

Herbert slumps passively through his days while Mom takes care of all his needs. He is not developing the skills he needs to navigate the world independently or advocate for himself. Mom is too afraid for him to teach him what he needs to know. She has forgotten to retract the umbrella once in a while to help him learn to fend for himself.

Retracting the Umbrella

Instead of worrying yourself ragged like Herbert’s mom, try stepping back now and then, just a little.

You may start to notice that your child is capable of much more than you thought he could do. This change may come in stages, or progress at a more rapid pace. Take your cue from how things go in school. I find that many parents have no idea how independent or resourceful their child can be at school (or how polite and interactive), because he regresses as soon as he gets home.

Your child may be aware that she has a problem but is unable to act on the coping strategies she is learning right away. Once she matures that extra little bit, things suddenly click.

You may be surprised at how much your child can manage on his own, when you start to retract that umbrella bit by bit.  If you have been a vigilant umbrella parent for a while and are wondering if it’s time to step back,  take that baby step to see how it goes. Remember: even a small step can be a major accomplishment for your child. Give it a try and  be sure to share with us and with  other “positively atypical” parents and friends about your experience.

Next Post: Key teachable moments for every child.

When Is “Too Much” Just Enough?

Umbrella Parents
Umbrella parents always know when the rain is coming, and are ready with a metaphorical umbrella.

You know the ones.  The moms or dads with chronically worried faces, who pre-empt every group parent meeting to talk about their child’s special needs, and seem oblivious to the eye-rolling of parents around them.  The ones who wait outside the classroom at the end of each day to make sure their child is bringing home the right books. The parents who take the longest in the parent-teacher conferences.  “Helicopter parents.”   “Smother mothers.”

You know them because they are us and they are you. Parents of atypical kids do stand out from the rest; they take care of their children in ways that other moms and dads don’t have to, risking criticism from other parents and weary sighs from teachers.  They look like they are helicopter parents, but here is the truth that only you know:

They are doing what it takes to get their kid through the day.  Sometimes “too much” is just enough.

Hello, Umbrella Parents!

Instead of helicopter parents or smother mothers, I like to refer to these devoted moms and dads as umbrella parents. Good parents know what their children need, anticipate those needs, and take action. They are like weathermen who know when the rain is coming and are ready with a metaphorical umbrella.

When a child is diagnosed as atypical, I always explain to parents that they will need to be more attuned to the child’s needs than the average parent, at least for a while. Helicopter instincts are a very practical response to dealing with your special needs child.

Why? Because most atypical children experience some impairment and delay of their executive function.  Executive function is a broad term for the process that takes place in frontal lobe of the brain: the ability to anticipate, plan, problem-solve, organize, and self-monitor one’s social behaviors.  That pretty much sums up the job description of a parent, doesn’t it?

Umbrella parents don’t hesitate to protect their kids

When parents know that their children will have problems in particular areas, not only is it important to intercede, pave the way for them, and inform those adults who teach them, it is critical.  Teachers and coaches are busy running programs with lots of kids, and the problems of a single child just don’t stand out—until they do.

At that point, how the coach or teacher treats the child can lead to a series of humiliations, unfortunate discipline tactics, and subsequent self-esteem problems for the child. Coaches, counselors, and some teachers can be too aggressive in their tactics unless they are informed and instructed about better methods to deal with a child who is different.

So parents, do not hesitate to be your child’s advocate! Stand up, call it out, pay no attention to the other parents who think you are helicoptering. You are protecting your child!

The 5 W’s of  Umbrella Parenting

When your child is beginning a new class, team, or other activity, you have the chance to set the stage for a positive experience for your child and a good relationship with the teacher or coach. It is your chance to replace the “helicopter” label with “attentive and available.”  Just remember the 5 W’s:

  • Who? Who should be in the meeting? When you ask to meet with the teacher, coach or activity leader, it’s best if you bring along backup. The more people to support you, the better.  A spouse, neighbor or even your child’s therapist.  There is strength in numbers; moms rarely get heard as well as a professional who is saying the same thing.
  • What? What should the parent bring to the meeting? A note from a doctor or a one page recommendation list could help the process.  For example, a note could say: “Andy suffers from an auditory processing disorder. This means that he may not hear your instructions the first time. Please do not yell at him for this, but do repeat it a few times if he seems confused.  You could also meet with him before the game to see if he has any questions.”You could also attach a brief printout about the disorder for him to read. Note that what the doctor is saying is exactly what you will say, but somehow the doctor or therapist note provides more weight to your requests.
  • When? When should the meeting take place? The earlier the better. I often advise parents to meet with teachers a few days before school starts to debrief them on your child’s needs.  Depending on how many adjustments your child needs, you may want 15 minutes up to a half hour.Ask the teacher for “15 minutes of your time” just to briefly explain the situation and why you, the parent, will be hovering a bit throughout the year.
  • Where? Location matters. You will want privacy, away from other parents.  You also may not want to involve your child if he or she is not ready to talk about his issues (stay tuned for a future blog post on this)
  • Why? The point of this first little meeting is to set the stage with the teacher, explain what the situation is, and communicate that you are a calm, attentive parent and want to help the teacher so that your child is not disruptive and also is getting what he or she needs.

Stay tuned for my next post, when I will talk about the flip side of umbrella parenting: over-indulging your kid, soothing your own nerves instead of his, and when and how to let go.

Hi Parents, This Blog is About YOU

A Positively Atypical Welcome

Atypical kids can be a challenge.... And your reactions and feelings matter!
Atypical kids can be a challenge…. And your reactions and feelings matter!

Hello, parents of children diagnosed with ADHD, learning disorders, or autism spectrum! If you’ve had a rocky road with your child, you’re in the right place.

Parents have different concerns at different stages of their child’s development and condition. You may still be in the early days, thinking something’s not quite right with your child but unable to put a finger on what it may be.

Or maybe your child has already been identified as needing help, but you’re still fuzzy on the details of what’s wrong and what to expect. Maybe you’ve already received the diagnosis and an intervention action plan and are overwhelmed by the sheer size of the mountain you’re about to climb.

Or, you might be an old pro at this, and have been fighting the good fight for years now. You’re frayed, worried, and stressed out by the whole process.

Take Care of Yourself to Take Care of Your Child

First things first: Take a deep breath. And then consider this vital piece of information: YOUR emotional response to your child’s condition is just as crucial as any therapy or treatment your child receives.

After the diagnosis, all of your attention and energy, and all of the attention and energy of those close to you and your family, will be focused on your child. And, to a point, that’s as it should be — nothing’s more important than helping your child get the very best care you can find.

But learning to manage your own feelings about your child’s condition is the key to remaining a strong, enthusiastic champion for him or her, even when things are at their most challenging.

I’m Dr. Rita, and I’m Here to Help

I’ll keep this part short, since we’re here for you, not me. But I also know that you want to be reassured that you’re getting the best advice you can. With that in mind, here are a few facts about me:

  • I’ve worked with families for over 20 years as a pediatric neuropsychologist, helping them understand their diagnosis and put together a treatment plan.
  • I evaluate children for learning disabilities, attention deficit disorders, autism spectrum, and high intelligence and aptitude (or gifted children). I also help demystify those unusual kids who don’t have an obvious learning condition but who seem quirky or different and I help parents learn more about their unique child.
  • I’ve watched countless parents ride the emotional roller coaster from denial to anger to guilt to isolation, depression, and fear — all before (hopefully) arriving at a place of acceptance of who their child is and what they need to work on.
  • I’ve learned through my clinical experience that the parents’ reaction to their child is the best predictor of that child’s future wellbeing. And if you know what intense emotions to expect, you’ll be able to reach acceptance — for both yourself and your child — much faster.

How Positively Atypical Can Help You in Your Journey

Many parents over the years have told me that, in retrospect, their child’s disorder has been an invisible gift. Because of that feedback, I feel confident encouraging you to have optimism and faith.

And that’s why I started this blog: To provide parents just like you with information to help you take charge of your child’s treatment plan and to help guide you toward that place of acceptance.

Here, you’ll find some of the leading research into brain-based emotions, learned optimism, and self-care techniques including meditation and mindfulness-based exercises.

I’ll also help you create a customized self-care menu full of actions you can perform to maintain calm and balance, whether you have ten minutes free or a whole weekend. You’ll find tips on communicating better with teachers, relatives, therapists, and others in your child’s life.

I’ll also talk about how you can reset the “normal” button in your own mind and learn to accept your child for who he or she is — and accept yourself as the parent of a child who is a little, or a lot, different.

Remember: The emotional responses you may be feeling about your child’s diagnosis, behaviors, or unique needs don’t make you a bad parent. They’re hard-wired, neurobiological reactions — just like the fight-or-flight response to fear.

But if you’re aware of this hard-wiring and know what to expect, you can identify where you are on the roller coaster. That will help you channel your feelings and separate them from the challenges of your child.  And that will make you much better at supporting him or her.

So pull up your favorite comfy chair, grab a cup of joe (or tea), and let’s talk. I look forward to your comments and suggestions, and to answering your questions about you and your wonderful, crazy-making, difficult, astonishing, one-of-a-kind child.

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